Elise Drake-Esposito was just weeks away from giving birth to her second daughter when she learned her five-year-old, Keira, had a rare, fatal genetic condition.
Ashly Wiebelt built her career as a speech therapist helping children with special needs. Now, she’s advocating for her own child with special needs, and fighting for his life.
by Kristina Cotter, PhD
A research consent is designed to protect patients from participating in research they don’t understand or agree to. In our research consent, we describe what RDMD Research is and tell you about any associated benefits or risks. We set up our research this way because we think it’s important to get your permission before we do any research using your information.
We started our ambassador program because of an overwhelming desire from patients and caregivers to get more involved in RDMD’s work and research. Patients were excited about RDMD’s product and mission, and felt eager to help in other ways, including by sharing information and answering questions about RDMD within their own communities.
by Talea Miller You may have questions about how RDMD keeps your health information safe and secure—many other patients have reached out about this very thing. We take security and data privacy very seriously—in fact, it’s one of our top priorities. We created a summary below to help you understand our privacy and security efforts. We work alongside experts in data privacy and security to ensure that the proper controls are in place for the data you trust us with. We know how sensitive your health information is and how big a deal unauthorized access would be. Please feel free to reach out to us about anything relating to data privacy and security. Below we explain in more detail how we keep your data safe.