Blog

UpdatedMay 14, 2020

Mary and Jerry’s lives were forever changed when Jerry was diagnosed with the rare disease PSP. He made generous choices to try to ensure future PSP patients and caregivers don’t go through what they did.

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UpdatedMay 8, 2020

Myositis Support and Understanding Association provides patients and caregivers platforms, programs and resources they need to thrive while living with a chronic and debilitating rare disease.

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UpdatedApril 30, 2020

Hannah’s family was secretive about her condition and didn’t tell her all the ways it was affecting her health. As an adult she advocates for patients and mental health support.

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UpdatedApril 23, 2020

People affected by chronic and rare conditions already know what it’s like to make big adjustments for health reasons, so they have a unique perspective during the challenges of COVID-19.

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UpdatedApril 16, 2020

Today, the RDMD team is thrilled to announce we’ve raised $14 million in Series A financing.

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UpdatedApril 16, 2020

SAN FRANCISCO, April 16, 2020 -- RDMD, a healthcare technology company dedicated to accelerating drug research for patients with rare diseases, today announced that it has raised $14 million in Series A financing.

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UpdatedMarch 26, 2020

Human connection is critical to all our mental health during this time. Here are a few creative ways to remind your friends and family you care.

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UpdatedMarch 12, 2020

People who are already managing existing health conditions may need to take some extra precautions and make plans to keep their care consistent.

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UpdatedFebruary 28, 2020

In honor of Rare Disease Day, we’re sharing a behind-the-scenes look at what inspires RDMD staff members to push for advancements in rare disease research.

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UpdatedFebruary 20, 2020

Patient registries can be an important tool to centralize information about a rare disease community. RDMD is a research platform that can complement registry efforts by providing the audit-trailed and research-ready data needed to push research forward.

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UpdatedFebruary 13, 2020

Emily was so consumed with caring for her son, who has a rare disease called Hunter syndrome, that she neglected her own well-being and faced grave consequences.

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UpdatedJanuary 30, 2020

Mindy has been a little warrior since day one. She, and her family, are managing a rare condition called ITP that could be life-threatening, or could resolve itself in time.

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UpdatedJanuary 22, 2020

Rhonda created Myositis Warrior as a fresh way to raise awareness for inclusion-body myositis, known as IBM, and other rare diseases.

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UpdatedJanuary 9, 2020

Thaddeus, 6, has a rare disease called NF1. His parents have to manage his care with the limited knowledge available about the disease.

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UpdatedDecember 12, 2019

Fred has tried medications, platelet transfusions and surgery, but won’t let his condition keep him from the most important life experiences.

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UpdatedNovember 14, 2019

For rare diseases, it’s critical to learn more about a condition before effective trials can be developed. That’s where a “natural history study” comes in.

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UpdatedOctober 10, 2019

Dayna’s studies as a speech pathologist helped her push for a diagnosis for her father’s neurological condition, and gave him a voice as the disease progressed.

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UpdatedSeptember 26, 2019

Drug development for any disease is a complex, expensive and slow process. Layer on top of that developing drugs for a condition that impacts a limited population, and we as a rare-disease community are up against some unique challenges.

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UpdatedSeptember 12, 2019

Carrie Szeles was told many times “you’re crazy” for thinking something was seriously wrong with her health. Now, she’s often told she doesn’t “look sick.” Through it all, she had to learn to be her own advocate and strongest supporter.

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UpdatedAugust 8, 2019

Elise Drake-Esposito was just weeks away from giving birth to her second daughter when she learned her five-year-old, Keira, had a rare, fatal genetic condition.

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UpdatedJuly 18, 2019

Ashly Wiebelt built her career as a speech therapist helping children with special needs. Now, she’s advocating for her own child with special needs, and fighting for his life.

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PostedMarch 4, 2019

by Kristina Cotter, PhD, CGC

A research consent is designed to protect patients from participating in research they don’t understand or agree to. In our research consent, we describe what RDMD Research is and tell you about any associated benefits or risks. We set up our research this way because we think it’s important to get your permission before we do any research using your information.

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PostedFebruary 14, 2019

We started our ambassador program because of an overwhelming desire from patients and caregivers to get more involved in RDMD’s work and research. Patients were excited about RDMD’s product and mission, and felt eager to help in other ways, including by sharing information and answering questions about RDMD within their own communities.

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UpdatedApril 23, 2019

by Talea Miller

You may have questions about how RDMD keeps your health information safe and secure—many other patients have reached out about this very thing. We take security and data privacy very seriously—in fact, it’s one of our top priorities. We created a summary below to help you understand our privacy and security efforts. We work alongside experts in data privacy and security to ensure that the proper controls are in place for the data you trust us with. We know how sensitive your health information is and how big a deal unauthorized access would be. Please feel free to reach out to us about anything relating to data privacy and security. Below we explain in more detail how we keep your data safe.

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