RDMD’s mission is to empower patients and communities to accelerate drug development for rare diseases.
The traditional drug development process isn’t able to support the unique needs of rare diseases, which affect 1 in 10 people worldwide. Important information from patient medical records is often trapped in hospitals or kept private, inaccessible to researchers who need it. Patients often have limited visibility and influence over how their information is being used for research.
RDMD aims to change that. We do hard work behind the scenes to ensure that patients’ de-identified medical information is as accessible, accurate and usable as possible for medical researchers, while putting patients in control of their own data. By leveraging modern technology and data science, we empower patients to remove the barriers to treatment development at every step of the way.
How we got started
Four years ago, I started experiencing hearing loss in my left ear. Doctors prescribed me steroids, thinking it was an infection, but the deterioration did not slow down. After numerous failed treatments, a specialist finally ordered an MRI, whereupon he discovered a large tumor on my left hearing nerve. Months later, another tumor was discovered in my right hearing nerve, and another on my spine. I was diagnosed with a rare genetic disease called NF2 (Neurofibromatosis Type 2), a disease that affects only 1 in 30,000 people. It completely changed my perspective.
All my life, I’ve been a technology entrepreneur, beginning with a tech company I started in high school. I’m now applying everything I’ve learned throughout my career to build RDMD, where we’re helping to accelerate treatments for patients with rare disease. Our mission is ambitious, but I can’t imagine working on anything more important than this.
Join our team
We are determined to build a strong company around our mission, and be able to invest in as many diseases as we can to generate better outcomes for patients. We work as a team, help each other to be the best version or ourselves, promote open communication, learn from our mistakes, and do good in the world.
In the news
Abundant funding, sparse data: San Francisco startup backs ‘real world’ model for rare disease drug developmentEndpoints News,April 16, 2020
RDMD Lands $14M to Expand Reach of Rare Disease Research PlatformXconomy,April 16, 2020
RDMD Named a 2020 TEDMED Hive InnovatorTEDMED,February 25, 2020
Digital Health 150: RDMD is One of the Digital Health Startups Redefining The Healthcare IndustryCB Insights,October 3, 2019
RDMD Co-Founders to Participate in Upcoming Rare Disease and Health Technology ConferencesBusiness Wire,September 12, 2019