RDMD’s mission is to empower patients and communities to accelerate the development of treatments for rare diseases of all kinds.
The traditional drug development process isn’t able to support the unique needs of rare diseases, which affect 1 in 10 people worldwide. Important information from patient medical records is often trapped in hospitals or kept private, inaccessible to researchers who need it. Patients often have limited visibility and influence over how their information is being used for research.
RDMD aims to change that. We do hard work behind the scenes to ensure that patients’ medical information is as accessible, accurate, and usable as possible for medical researchers, while putting patients in control of their own data. By leveraging modern technology and data science, we empower patients to remove the barriers to treatment development at every step of the way.
How we got started
Four years ago, I started experiencing hearing loss in my left ear. Doctors prescribed me steroids, thinking it was an infection, but the deterioration did not slow down. After numerous failed treatments, a specialist finally ordered an MRI, whereupon he discovered a large tumor on my left hearing nerve. Months later, another tumor was discovered in my right hearing nerve, and another on my spine. I was diagnosed with a rare genetic disease called NF2 (Neurofibromatosis Type 2), a disease that affects only 1 in 30,000 people. It completely changed my perspective.
All my life, I’ve been a technology entrepreneur, beginning with a tech company I started in high school. I’m now applying everything I’ve learned throughout my career to build RDMD, where we’re helping to accelerate treatments for patients with rare disease. Our mission is ambitious, but I can’t imagine working on anything more important than this.
Co-founder and CEO
Head of Engineering
Patient Operations Lead
Clinical Abstraction Lead
Kristina Cotter, PhD
Head of Product
Head of Content and Brand Marketing
Dione Kobayashi, PhD
Gregory Enns, MD
Jill Hagenkord, MD, FFCAP
Join our team
We are determined to build a strong company around our mission, and be able to invest in as many diseases as we can to generate better outcomes for patients. We work as a team, help each other to be the best version or ourselves, promote open communication, learn from our mistakes, and do good in the world.
In the news
RDMD Co-Founders to Participate in Upcoming Rare Disease and Health Technology ConferencesYahoo Finance,September 12, 2019
10 Recent Examples Of Powerful Innovation In HealthcareForbes,March 12, 2019
Allogene, Cortexyme & RDMD Headline Xconomy’s Dec. 5 Biotech ForumXconomy,November 8, 2018
You Acted, the Industry Responded: We Just Raised $3 MillionOnno Faber,August 23, 2018
The Clock Is Ticking Faster for a Patient Turned Medical DisruptorNeo.life,June 28, 2018
Accelerating NF Research Thru TechnologyChildren’s Tumor Foundation,February 28, 2018
Power to the PatientsNeo.life,January 18, 2018
Hack Your DNAMens Health Magazine,October 22, 2017
Can Hackers Save This Man’s Hearing and Eyesight?Neo.life,October 8, 2017
If Your Doctors Can’t Cure Your Cancer, Maybe You CanNeo.life,July 27, 2017